A Place to Go: How Scleroderma Changed My Life

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List Price: $13.95
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Manufacturer: iUniverse, Inc. Written By: Maureen Taylor

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Binding: Paperback Dewey Decimal Number: 920 EAN: 9780595405305 ISBN: 0595405304 Label: iUniverse, Inc. Manufacturer: iUniverse, Inc. Number Of Items: 1 Number Of Pages: 133 Publication Date: 2006-08-27 Publisher: iUniverse, Inc. Studio: iUniverse, Inc.
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Editorial Reviews for A Place to Go: How Scleroderma Changed My Life
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For two years, author Maureen Taylor’s health slowly deteriorated as she was pursued by a relentless but mysterious illness. It disfigured her face, turned her hands into claws, and left her skin as hard as a board. In 1988, she finally learned the name of the disease that was ravaging her body: scleroderma. Scleroderma was more than just a disease—it was also Taylor’s teacher. It taught her that the world of medicine is a confusing labyrinth and the only map worth using belongs to the patient. Conventional care formed the bedrock of her healing metamorphosis. But useful alternative therapies—from a macrobiotic diet to mildly esoteric herbal remedies to magnetic therapy—proved worthy on countless occasions. Scleroderma taught Taylor to take full responsibility for her physical, emotional, and spiritual healing. Nobody else knew her needs as well as she did. After suffering through her share of incompetent and uncaring doctors, Taylor found Dr. Hal Whitman, an astute rheumatologist who knew scleroderma better than most. He worked with Taylor, listened to her suggestions, and evaluated her progress. Together, they forged a path for Taylor’s recovery and renewal, a story she shares in A Place to Go: How Scleroderma Changed My Life.
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Consumer reviews:
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Customer Rating:      Summary: Five Star Review Comment: Awesome book!!! I enjoyed reading it immensely. I've been bed - ridden with MS for 18 years. Can't move from my neck down. So I know pain. Nice Irish girl from Ireland. My grandfather, Pat O'Brien, was born in County Mayo. I need to know the exact anti - biotic that was used. Bless you Maureen Taylor. You wrote a great read.
Hilary O'Brien
Customer Rating:      Summary: A Message of Hope and Healing Comment: When I was first diagnosed with systemic scleroderma, my doctor gave me the equivalent of a death sentence. The next day I saw Maureen on television and she talked about her journey leading her to beat this deadly disease. I called her and she even was kind enough to allow me to come to her home. She taught me her healing methods with qi gong and nutritional recipes. I met her life saving Dr. Whitman, who has been by her side through this ordeal. Most of all, I want to praise her for having the courage to share and inspire hope in those of us afflicted with this condition. She is truly a guiding light in the storm!
Customer Rating:      Summary: The Common Threads for a Cure Comment: Amazon has once again pointed me toward a very helpful resource in Maureen Taylor's book "A Place To Go". I am a nurse and mother of a son who was diagnosed with Diffuse Systemic Scleroderma three years ago at age 25. As painful as this book is to read, in that it explains so well what a patient with scleroderma experiences, I was warmed by the similarity in our sources of hope that Maureen and I have both sought. I, too, found Dr. Brown and his book the "Road Back" as well as Henry Scammell's book "Scleroderma: The Proven Therapy That Can Save Your Life" both opening the door to antibiotic therapy for this devastating disease. From medication, to yoga to nutrition, Maureen and I have turned to the same things in hope for a reversal of a disease. My son has seen reversal of symptoms, although he is by no means cured as of yet. But we keep exploring the alternative choices. The true key is finding a physician partner in your battle. Traditional medicine plays a role in recovery, but the "traditional" doctor blinded by the "miracles" developed by the pharmaceutical industry truly provide little in the way of providing hope and a cure for this disease. Quick to offer d-Penicillamine or other harmful drugs, many scleroderma patients who haven't found these books, accept these treatments as their fate and live painful, disabled lives. To everyone who reads this book - share your knowledge of its existence and of Dr. Brown and Henry Scammell's book, as you could just be opening a door of hope to someone who needs it. And offer them the Road Back Foundation as a source of support for each other at www.roadback.org. It is people like Maureen, willing to share their story, that will open the minds of the medical community and the patient to the true hope that lies in alternative medicine with some assistance from traditional medicine, by using simple, relatively harmless drugs like the antibiotic Minocin. Spread the word as Maureen's book does so well.
Customer Rating:      Summary: A Place To Go: How Sclereoderma Changed My Life Comment: The author is truly inspiring. Her story motivates us all to be the very best we can be, and to fight our own battles fully. Well worth the read.
Customer Rating:      Summary: A story of Strength Comment: My name is Leslie Geraghty of Wayne, NJ. When I had first met Maureen Taylor, it was September of 2005. Maureen was one of our first customers during our Grand Opening at our Nature Store.
A graceful, well dressed, soft spoken woman. We had spoke on several occassions and I enjoyed our chats. It was my husband who informed me one day of very disturbing news ot this very rare disease that had nearly taken this womans life earlier. As he discribed the hoffics of the physical changes and personal challenges she had faced, I thought for a moment that we must be speaking of 2 different people.When we met again we spoke briefly of the illness. As we spoke it was clear this woman in front of me was the image of strength. hope, and perseverance. Maureen's book goes into some detail of her past as a child in Ireland and the journey here to the US. She goes into great detail of the symptoms that krept up day by day, the numerous Drs visits, tests, and psychological tolls she has encountered. It was frustrating to see the lengths she had to go to, to finally get a proper diagnosis. The relationship between her husband and how his denial and complete unsympathetic being basically turned his back on his wife in need, which finally did end in divorce. This book completely moved me. I could not put this book down. This is a book of hope, determination, and inner strength. Maureen now opens her home to others who suffer the same rare disease and helps them to cope with the up hill battle they face. I admire Maureen for not only the battle she fought but for what she offers to others who suffer medical problems and frustrations.
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More Information on A Place to Go: How Scleroderma Changed My Life
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