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My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews





My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews
List Price: $29.00
Our Price: $23.20
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Manufacturer: Cold Spring Harbor Laboratory Press
Written By: Max S. Gerber

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Binding: Hardcover
Dewey Decimal Number: 618.9212
EAN: 9780879697822
ISBN: 0879697822
Label: Cold Spring Harbor Laboratory Press
Manufacturer: Cold Spring Harbor Laboratory Press
Number Of Items: 1
Number Of Pages: 203
Publication Date: 2008-02-01
Publisher: Cold Spring Harbor Laboratory Press
Studio: Cold Spring Harbor Laboratory Press

Editorial Reviews for My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews

My Heart vs. the Real World is a photo documentary volume that explores the lives of children with congenital heart disease (CHD) through striking black-and-white photographs and interviews with subjects and their families. Ten chapters each spotlight a single child and in an additional chapter, the author writes about his own experience of growing up and living with CHD. The images and personal accounts reveal how, compared with someone healthy, a chronically ill child develops adult attitudes in a much different way. These are stories of how CHD patients and their families cope with and overcome extraordinary obstacles and learn about themselves during the process. My Heart vs. the Real World is sometimes funny, sometimes sad, always thought-provoking, and altogether human.


Consumer reviews:

Customer Rating: Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5
Summary: Inspiring...
Comment: I recently bought this book out of curiosity really. My baby was recently born with Transposition of the Great Arteries, VSD and PS. This book allows me to take a look inside the lives, a voyeur if you will, of children growing up with CHD. It is inspiring and gives us "new" parents in the heart community hope of seeing our babies grow and flourish. Max Gerber has put into pictures and words exactly what heart parents are looking for to dream the dream of seeing their children progress and thrive! Thanks MAX!!

Customer Rating: Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5
Summary: This is "Heart Rendering" Photography ~ And... a "MUST BUY" for you and your family. Thanks Max for your expertise work!
Comment: Hi, I am "A Mom with a thirst for truth & knowledge"...

This book is a great book of photography and excerpts from each child and family. It highlights children growing up with congenital heart disease (CHD). Their personal accounts reveal their true feelings and by sharing their personal experiences, have inadvertently shown others how they have handled their own lives through extraordinary situations. These children and their families are an inspiration through their bravery and willingness to share their lives with the world.

Max has captured each subject magnificently through his excellent expertise and very revealing photography.

Hopefully this book will help bring about awareness to the many people who do not realize that Congenital Heart Defects are the number 1 birth defect in children. This beautiful book will help get that awareness out there and consequently help others with CHD!

Thanks for putting this book together Max, I appreciate all your hard work and I'm sure, many frustrations, that you have gone through over the past few years in compiling the materials for this book. I know and feel that your book will be a wonderful success and that the ultimate goal for this book will be an instrument of hope that gives other parents and children with CHD an understanding to those who have not experienced it.

My recommendation is that you purchase this elegant book of photography... experience it for yourself, share it with your children and families and enjoy it as much as I have.





Customer Rating: Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5
Summary: Amazingly beautiful
Comment: Wow........I got this book for my almost 10 year old son. He has TOF/DORV, had tons of complications, ending up in PICU for a year and emerging with lots of "accessories" including a trach, ventilator, oxygen, gtube, pacemaker and nurse 24/7. He has been without those lovely things (except the pacer) for many years now, but is starting to come to the realization that his life is different than many of his friends. Not tons different, but different. He has loved Camp Del Corazon, and we got this for him to continue to help him see that there are lots of kids who have had similar experiences.

So last night I grabbed it at 11:30pm and started flipping through it.....I was engrossed. I didn't put it down until 1:30am and I was in tears and very prayerful. Sometimes even with all that we have been through, and all the support he needs, I get caught up in the laundry, bills, shuttling kids to ballet/golf/physical therapy, and don't really remember how complicated and beautiful and terrifying his life is. How varied and amazing these kids are, yet they are tied together with such similar life experiences. This book, in it's beautiful (though solemn) photographs and words of the children and their parents, put on paper what we have known for years. That despite these struggles, these differences, this identity as the "heart kid", that these kids can find their own way in life and are richer and more compassionate for it.

Max Gerber did an amazing job with this book, and gave all of our kids a wonderful gift. It lets them meet other children and see the range of experiences in families dealing with various CHDs. This is a MUST BUY for you and your child. I am buying it as gifts for our Ped Cardiologist, and other families I know who are dealing with this as well. Bravo.

Customer Rating: Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5
Summary: beautiful and moving
Comment: this book is stunningly photographed and full of moving personal stories. it's inspiring and real. an utterly wonderful book.

Customer Rating: Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5Average rating of 5/5
Summary: Transcending
Comment: Not knowing anyone affected with Heart Disease, I approached this book from a photography standpoint. Taken by the photographs, I sat down and read the book and was immediately drawn in.

Woven into this book is Max's story. He is in the book, in words and pictures, telling his story of being a kid, like the kids in the book, growing up with heart disease. He tells us, his parents tell us, about his childhood with words and pictures and then gets into the stories of the kids in the book.

After reading Gerber's chapter on himself, one can't really look at the images of the kids the same. At it's best it seems like he is channelling the kids, finding aspects of himself in each kid to focus in on, which gives the photographs this kind of psychic power. When Gerber photographs a bunch of boys ripping open a present at a birthday party, it just seems to transcend the subject matter into a picture about wanting to have a normal life with small normal thrills.

The photographer isn't really just connecting with his subjects in this book, it seems like he is trying to figure something out thru them... and we are just here witnessing it all. By the time you get to the end of the book and see the shot of Gerber photographing himself in the mirror with two of the kids, the book kind of hits this emotional crescendo and you see what this is about. MG is using photography to understand his own life, thru these kids. The book was a document of this kind of personal fact-finding mission.



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More Information on My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews

Amazon.com: My Heart vs. the Real World: Children with Heart Disease ...
Amazon.com: My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews: Max S. Gerber: Books


My Heart vs. the Real World: Children with Heart Disease, In ...
My Heart vs. the Real World is a photo documentary volume that explores the lives of children with congenital heart disease (CHD) through striking black–and–white photographs ...


My Heart vs. the Real World: Children with Heart Disease, In ...
My Heart vs. the Real World is a photo documentary volume that explores the lives of children with congenital heart disease (CHD) through striking black–and–white photographs ...


Amazon.com: Customer Reviews: My Heart vs. the Real World: Children ...
Wow.....I got this book for my almost 10 year old son. He has TOF/DORV, had tons of complications, ending up in PICU for a year and emerging with lots of "accessories ...


CHIN: What's New
My Heart vs. The Real World: Children with Heart Disease, In Photographs & Interviews (Hardcover) Max S. Gerber Cold Spring Harbor Laboratory Press, Cold Spring Harbor, NY


Powell's Books - My Heart Vs. the Real World: Children with Heart ...
The lives of children with congenital heart disease (CHD) are explored in this photo documentary volume through striking black-and-white photographs and interviews with the ...


My Heart vs. the Real World » ABOUT
My heart vs. the real world : children with heart disease, in photographs & interviews / by Max S. Gerber. p. cm. Excerpts originally appeared In L.A.


My Heart vs. the Real World » BUY THE BOOK
My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews © 2008 • 203 pp. • 109 photographs • Hardcover • 10.25″ x 10.25″ • $29 • ISBN ...


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